GuestBook2000

BTC GuestBook 2000

My Grandfather is 72 years old on December 5th, 2000 he was Dx with Glioblastoma Multiforme grade IV. Sience than we have gone to appt for radiation, and then chemo. He had one tumor removed at Mayos. He has no effects of the remaining tumor, only from the medication that he is taking for example the Decadron has caused an Increase in appitite. I am an emergency room nurse and have seen people Dx with these things, and see how it effects familys. Very differnt feeling when it is your own. I am wondering by experince of people who have gone through this what kind of thing to expect to happen mentally and pysically down the road. His prognosis is 3-6mths. Any information would be greatly appriciated.
Hayley Stuckey <smcgn99_AT_yahoo_DOT_COM>
Eau Claire, MI - Sunday, December 31, 2000 at 13:19:28

My daughter was diagnosed with a pilocytic astrocytoma on her brain stem shortly after receiving a chicken pox vaccination. She has left and right ptosis and has to hold her eyelids open to be able to see. Her left eye became misaligned after undergoing a Biopsy. She has received radiation treatments at St Jude of Memphis, TN.
S <sirmajestic_AT_alltel.net>
Tunnel Hill, GA - Sunday, December 31, 2000 at 00:46:02

Ive had surgery twice to remove a menegioma, located on and in the sagitial sinus nerve. I have been told that the biopsy showed that the tumor contained what would be considered aggressive cells and although the tumor is not malignant, it is what is called atypical. I am curious if anyone has a layman's definition for the term atypical as it relates to tumor classification and also if anyone has input regarding gene mutation and tumor(such as the one described above)development in the brain. It has been 8 years since the last operation, the remaining part of the tumor has not grown since, and I take 500 mg dilantin per day. Im 48(jan1st). Thanks in advance to anyone with helpful information, on this.
Pete Cheviot <surftime528_AT_aol_DOT_COM>
Sayville, ny - Saturday, December 30, 2000 at 09:34:16

I recently lost my beloved mother to high grade glioblastoma multiforme. She was 74 years old and in very good health at the time of diagnosis. Although evry case and treatment differs, I am willing to share the process she went through from diagnosis to her time of passing. Please feel free to e-mail me and I will try and be of any assistance to anyone whose loved one has been stricken with this horrible disease.
Ronald A. Forfia <ron4fia_AT_lvcm_DOT_COM>
Las Vegas, nv - Thursday, December 28, 2000 at 21:42:58

My name is Ron, I am a Master Sergeant in the Untited States Air Force stationed in Las Vegas, Nevada. On December 6th, 2000 I lost my beloved mother to high grade glioblastoma multiform. At the time of diagnosis she was 74 and very healthy. If anyone would like any information on her treatment, prognosis, and her quality of life throughout the illness until her passing, please feel free to e-mail me and I will share my experience with you. Thank you and god bless!!
Ronald A. Forfia <ron4fia_AT_lvcm_DOT_COM>
Las Vegas, nv - Thursday, December 28, 2000 at 19:28:43

Thank you MGH for being there to help answer our questions. Sincerely, The Parvey Family
Richard Parvey <richardwparvey_AT_msn_DOT_COM>
- Thursday, December 28, 2000 at 17:06:34

My son was diagnosed with Medulloblastoma in Nov '99. 95% resection and radiation completed and chemo stopped half way through treatment. No sign of any cancer today. Thank God!!
adobson_AT_sympatico.ca
Beaverton, Ont - Tuesday, December 26, 2000 at 19:34:07

I am looking for any info on the after affects of surgery on a glomus jugulare (or any) brain tumor. My 21 yr old cousin had surgery on Wednesday to remove a tumor from the right side. The Dr's said everything went extremely well and that all of her facial movement would return to normal within 6 months. They sent her home today (A bit soon in my opinion) and after she got home she slept for awhile and then got up saying she was hot. She started staring off and shaking a little and taking very short breathes and then suddenly she was fine again after a few minutes. She said she never heard us yelling her name and that she just felt confused for a few minutes. Needless to say she is back in the hospital so they can figure out what happened. We are thinking maybe a seizure or a slight stroke....But why?? back in August she had an angiogram (??) and she had a slight stroke then too but no damage from it. Has anyone else experienced anything like this after brain tumor surgery?? I would love to hear from someone who can tell us anything. Thanks!
Tracy Payne <tweety_AT_kellnet_DOT_COM>
Lagrange, OH - Saturday, December 16, 2000 at 23:03:06

I'm 20 years old and i have some problems. I have since I was 14 years old a strong smell in my nose (it's smells a little like burning rubber). I also have tinnitus, it started 2 years ago and I hear it all the time. And I have sometimes a strange feeling on my face. I also have a short memory. What I don't have is a headache. So my question is, if all braintumors always cause headaches? And if you have a CT-scan is it possible that doctors can misdiagnose the picture?
ananymous <yooree_AT_hotmail_DOT_COM>
- Saturday, December 16, 2000 at 18:37:30

I am a 39 year old father of 2 girls who was diagnosed with glioblastoma multiforme grade IV on4/99. Since then, I,ve had surgery to remove a 8-CM sized tumor,followed by radition treatment,chemotherepy,and radio surgery.MRI on 4/2000 showed 3-CM regrowth. 7/00 MRI showed no change from previous MRI.AT present,I am not on any treatment,just waiting around to see what happens next. I would like to correspond with someone with same.E-mail me and let me know how your're handling things
Mitchell Cho <chom001_AT_hawaii.rr_DOT_COM>
Honolulu, HI. - Thursday, December 14, 2000 at 14:47:46

I just want to know about an anticancer drugs for a brain tumor, such as, astrocytoma for 8year old boy.
Shin <diamondtomo_AT_hotmail_DOT_COM>
Tokyo, - Tuesday, December 12, 2000 at 04:51:21

I have been diagosed with Oribital Pseudo Tumor, can anyone tell me anything about this?
Phyllis Forrester <edandphyll_AT_webtv.net>
Middletown, OH - Monday, December 11, 2000 at 16:30:42

I waz diagnosed with medulla blastoma on July 7 2000. im 16 years old and am looking for other teens who have gone through a similar experience. Drop me a line and tell me how you are coping
Ilsa <uma_fondue_AT_yahoo_DOT_COM>
Regina, SK - Monday, December 11, 2000 at 14:06:48

My elder brother has brain cancer (glioma). His right eye can hardly see anything and the doctor says it's very serious, that it's cancer and it's growing bigger and bigger. We do worry about it. If you have good treatment or advices, please inform us. Our tel/fax number is 0086-713-8612975.Thank you very much! S.O.S.
Kitty Chen <iggy_AT_163.net>
Huanggang, Hubei - Friday, December 8, 2000 at 22:57:51

My 35 years old husbond did in May 2000 have diagnosed "Non-operable spinal benign astrocytoma (Cervical 5-6-7) possible grade II". In July/August he did receive 28 readiation treatments. I would like to ask if you should know of any people with similar diagnosis we can get in contact with - Please contact us.
Heidi Adrian <nicolais.stampe_AT_get2net.dk>
Solroed, - Thursday, December 7, 2000 at 15:14:21

My husband was diagianosed with hydrocephaleus at the age of 32. He had a VP shunt placed and after 2 years it broke at the neck and a second shunt was put in. The second one as so far lasted 3 years, he finds himself to be lethargic often and I was wondering if anyone out there has any similiar experiences or new information on new techonology avialable. His vision is no longer as good as it use to be.. I would be grateful for any new news on VP shunts or anyone with similiar experiences.. Sharon
S.Pirie <sprie_AT_ibm.net>
Melbourne, - Monday, December 4, 2000 at 02:41:09

My 37 year old brother in law has undergone two craneotomy's and now has to go through another procedure in which he has to be awake during the whole thing. He said he has Oligodendroglioma. The family is very concerned at how this has progressed over the past two years. We are not quite sure where it is going. He says if they get it all he should be ok and just go for regular MRI's to watch the progress. We are all scared. All prayers are welcomed.
Dee <dlwdino_AT_aol_DOT_COM>
Aurora, IL - Thursday, November 30, 2000 at 22:45:10

My Mother has recently been diagnosed with a Glioblastoma multiforme. Needless to say, any information is greatly appreciated on this nasty tumor. Your information is wonderful and has helped me understand the process of "treatment" for this type of brain tumor.
Carrie Robinson
- Thursday, November 30, 2000 at 13:21:19

My mother in law just had surgery for a glioblastoma tumor grad IV. Anybody with any information that we could share with, would be very appreciated. Please email me. Thank you
Debbie <Darlindeb4u_AT_aol_DOT_COM>
Patchogue, ny - Saturday, November 25, 2000 at 14:48:49

Could you please inform me if an online consultation for an NF2 diagnosis is possible and how this could be arranged. I would like to discuss the therapies available and any other assistance that may be available to foreign patients.
LOCUNDA KARAM <select_AT_iafrica_DOT_COM>
cape Town , - Saturday, November 25, 2000 at 12:08:33

my mother has been diagnosed with a menengioma, left side of her brain and a hemagioma in the back. the neurosurgeon we spoke with has recommended surgery because he said it has "veins and tails" (as told to me by my father)and he thinks surgery would be the best option. he has referred us to a neurosurgeon at jackson memorial as we live in south florida. i am interested to get any feedback on it, on gamma knife radiosurgery as a possibility, and i would also like to know of any other neurosurgeons specializing in treatment of menengiomas anywhere else in the country.
melissa <mindbender11_AT_aol_DOT_COM>
coral springs, fl - Friday, November 24, 2000 at 08:37:54

My Stepmother has a Glioblatomer grade 4 for 8 months, which is inoperatable, does anyone have any alternative treatments, remidies, or dietery requirements. She has already had radiotherapy, can anyone suggest anything? (ASAP)
Pat McArdle <pat_AT_p.mcardle.free-online.co.uk>
- Thursday, November 23, 2000 at 16:00:41

I am going to have right temperal lobe surgery and would like to know more about it. I am having seizures partial seizures, I would like more information. Thankyou richard sarif
Richard Sarif <richardsarif_AT_hotmail_DOT_COM >
Sydney Australia, - Saturday, November 18, 2000 at 16:14:39

I was just checking back in. My 73 year old father is losing his battle with glioblastoma multiforme. His doctors finally admitted on October 18,2000 that there was no hope. I just want others in this situation to know that there is help available to help their loved ones pass from this world with dignity and pain management. We were offered Hospice care and accepted and have been extremely pleased with them. They are helping us keep Dad at home and keep him as pain free as possible. My sisters and I could not care for him effectively without their guidance. They are also helping us to deal with this and helping us prepare our children for the loss of their beloved Pawpaw. Please accept the help they can give if you find yourself in this terrible situation.
Theresa Hommel <tandmhommel_AT_hotmail_DOT_COM>
Tylertown, MS - Thursday, November 16, 2000 at 10:33:33

please advice about my friend who is suffering from anaplastic astrocytoma,right temporal 3rd grade.he has been operated once & about 20gms. of tumor have been removed.but he is still having tumor of same quantity,after undergoing radiation therapy for 14 days.
BHARAT <rajputbs_AT_yahoo.co.uk>
- Thursday, November 16, 2000 at 05:05:44

Silly me. Change the spelling and take away the prefix and I find "Ependymoma". I am sure that the "sub" is significant in this case but I am not sure what its significance may be. Perhaps lesser or under or not yet really huge.
Jim Avichouser <sabotjedi_AT_aol_DOT_COM>
Pocatello, ID - Thursday, November 16, 2000 at 01:55:38

I have been told by the VA in Salt Lake City, Utah that I have a possible "subependenoma" and have been searching for reference to this. The discovery came as a result of a search for the cause of hemifacial spasm (probable trigiminal neuralgia) through MRI. I am told that the mass which has been located in my brain could not be causing the pain. The current plan for treatment is to repeat MRI in February 2001 and otherwise wait to see if "something bad happens" in the meantime. Any insight would be welcome. I will continue to search.
Jim Avichouser <sabotjedi_AT_aol_DOT_COM>
Pocatello, ID - Thursday, November 16, 2000 at 01:35:07

your site is great aming a 10 grader .
danielle cota <5062 glendale ave>
green bay, wi - Wednesday, November 15, 2000 at 08:48:51

Thank you- my son just diagnoses with Brain Stem Glioma.- We had partial removal- looking at options.
sandra Lucius <slucius_AT_aol_DOT_COM>
Mariettta, GA - Tuesday, November 14, 2000 at 20:56:49

What is the statistical occurrence of paediatric brain stem gliomas? Statistically speaking what is the current success rate with treatment of paediatric brainstem gliomas, can the determining factors be identified?
Tony O'Flynn <tony.oflynn_AT_cso.ie>
cork, - Tuesday, November 14, 2000 at 15:00:28

Thank you for this most descriptive information I have come across in my research on this topic. My mother-in-law was recently diagnosed and undergoing treatment. Being in the health field, I had some knowledge of this Dx, however, family unaware of the impact this disease has - great info in "layman's terms" so they have a better understanding - thanks again
Marcy <mand3ts_AT_aol_DOT_COM>
Northampton, PA - Wednesday, November 8, 2000 at 08:51:22

My husband was admitted to the hospital 10/28/99. Test showed 2 tumors to the brain. We were told nothing could be done. For 5 days we were given no hope. The biosipy was done on the 11/3/99 and results were given that a treatment plan would be given. Radiation was given in order to shrink the tumor followered by chemo. The cancer is primary brian lymphomia (only 2 in a millon). The doctors stated there had to be cancer cells somewhere in the body. No test preformed showed any other cancer cells. He as had 3 mri and cat scans since completeing the radiation and chemo but nothing has showed on these test other than scar tissue. He is doing well. We would like to hear from other patients with primary brain lymphomia.
marilyn <johnmarilyn4905,_AT_yahoo_DOT_COM>
amoru, ms - Sunday, November 5, 2000 at 13:16:11

Thank you for a very clear and informative discussion. I had my first surgery in '93 and just had my 2nd in April of this year. (I had radiation following my first surgery, but haven't started any other treatment with this one.) I've already participated in one research study:Imaging IUdR Incorporation Into Tumor DNA and would be happy to do more. (This was at Sloan-Kettering where I'm treating.)I'd really like to hear from other people who are dealing with this; I know I'm not taking as good care of myself as I should right now. ) Thanks.
Alice Zingarelli <zenzingo_AT_aol_DOT_COM>
White Plains, NY - Friday, November 3, 2000 at 22:30:19

Diagnosed with a mixed oligo/anaplastic astrocytoma I & II on 6/27/00. Craniotomy on 7/3/00 with 7.5x7cm. debulked and no deficits. Currently on round 2 of Temodar/Accutane (round 1 showed some shrinkage:); Another craniotomy scheduled for Feb., 01.
Susan Higgerson <slhiggerson_AT_rocketmail_DOT_COM>
Cape Girardeau, MO - Monday, October 30, 2000 at 10:40:27

I really like your web page. It is very easy to navigate, with alot of useful information. I book marked it for future visits.
Alan Shepherd <alan_AT_hollandeph_DOT_COM>
douglasville, ga - Wednesday, October 25, 2000 at 14:21:13

Two years ago i was diagnosed with optic nerve glioma of the right orbit. I am now a healthy 18 year old female. I was treated through radiation therapy and the tumor has since stopped growing. This tumor is benign and I have gotton most of the vision back in my right eye. (at worst is was 20/200!) If there is anyone who has this disorder you can contact me for information or even just to talk. I learned through my ordeal that talking is a big part of the healing process, something i wish i had known earlier. Thank you and good luck. meghan
meghan <meggala_AT_yahoo_DOT_COM>
ny - Wednesday, October 25, 2000 at 11:49:07

I am a 12 year survivor/prosperer og GBM/oligo. Are you interested in my story?
chaplain_AT_overcomers.org <www.overcomers.org>
Sugar Land, TX - Tuesday, October 24, 2000 at 13:48:04

My son has an optic nerve brain tumor. He is 9 years old and we found out last year in Nov. 1999..
Latrese Attaway <rattaway_AT_bulloch.net>
- Tuesday, October 24, 2000 at 09:22:11

I was diagnosed with benign menengioma in 1995. It was removed in surgery then. I was told it could grow back. Was wandering if anyone out there has had an incidence of regrowth.
Randi <parkle62_AT_webtv>
McKees Rocks, Pa - Monday, October 23, 2000 at 01:40:57

I am a 55 year old male who had an anaplastic ependymoma removed in Feb. of this year. It was at T-10,11,12,and L1. 25 hits of radation to follow. I'm doing so,so. Had my check up in Dartmouth, Hitchcock Med Center, Lebonon, NH. MRI next week. I found your Info pages very helpful. Thank you, Dwight
Dwight Whitcomb <dotcomplus_AT_top.monad.net>
Jaffrey, NH - Sunday, October 22, 2000 at 23:09:28

I have found your site informative, a friend is now in the Hospital in Portland Me having surgery. She elected to go with the platinum coil and our prayers are that all will go well.
Pat Boudreau <patricia.boudreau_AT_cmpco_DOT_COM>
Freedom, ME - Thursday, October 19, 2000 at 08:52:28

I HAVE BEEN DIAGNOSED WITH A GLIOBLASTOMA LEVEL V. I HAVE HAD A CRANIOTOMY THAT REMOVED 90% AND HAVE WENT THROUGH RADIATION THERAPY. I JUST HAD MY MRI AND AM AWAITING RESULTS. IF ANY ONE HAS ANY GOOD STORIES AND INSPIRATION OR JUST SOME ADVICE FOR ME OR IF YOU ARE GOING THROUGH THIS TOO, PLEASE E-MAIL ME. THANK YOU. I'M 31 YEARS OLD, I TURN 32 ON OCTOBER 16TH.
JOHN MAGALLANES <JOHNNYMAGG_AT_YAHOO_DOT_COM>
ELLIJAY, GA - Friday, October 13, 2000 at 12:10:29

MY FAMILY AND I HAVE BEEN VERY HAPPY WITH THE CARE WE RECEIVED AT THE MGH BRAIN TUMOR CENTER. MY ONLY REAL CONCERN IS THAT MY MOTHER WAS TREATED USING A PROCEDURE THAT HAD ONLY BEEN FDA APPROVED FOR 6 MONTHS, AND SINCE THAT TIME THERE HAS NOT BEEN MUCH FOLLOW UP ON HER CONDITION OR SYMPTOMS. I WOULD HAVE LIKED TO AT LEAST RECEIVED SOMETHING TELLING ME THAT THE PROCEDURE WAS BEING REEVALUATED OR ADJUSTED. THE PROCEDURE USED WAS THE PRS DEVICE WHICH INSTILLS DIRECT RADIATION INTO THE BRAIN DURING A STERIOTACTIC BIOPSY. I FEEL THE DOSAGE COULD BE ADJUSTED DUE TO THE SEVERITY OF THE SIDE EFFECTS MY MOTHER SUFFERED. DOES ANYONE HAVE ANY INFORMATION ON THAT? THERE HAS NOT BEEN A GREAT "QUALITY OF LIFE" SINCE THAT TIME.
ERICA <EHASENFUSS_AT_LIFESPAN.ORG>
- Monday, October 9, 2000 at 06:46:10

you need to add lots of pics
greenbeaniegurl <greenbeaniegurl_AT_hotmail_DOT_COM>
PORT MACQUARIE, N.S.W. - Monday, October 9, 2000 at 01:01:34

i have just been diagnosed with a epidermoid tumor. do you have any information on that tumor?
shari goll <sharigoll_AT_hotmail_DOT_COM>
seattle, wa - Tuesday, October 3, 2000 at 17:17:52

My 73 year old father was diagnosed with a stage 4 glioma multiforme in August of 1999 after he had a car accident that was caused by a seisure resulting from the tumor. We were shocked. This man had never been sick before and now he has cancer. He had the tumor removed on September 29 1999 and then had 6 weeks of radiation theraphy followed by experimental treatment with Thalidomide. He seemed to do well until his routine MRI in March 2000, showed that the tumor had returned in the same place,same size. He was then sent to Oschners Hospital in New Orleans for a steriotactic radiation treatment. Dad has progressively worsened since he had this treatment in July. We have been told by his doctors that they can't tell if the enhancement on the MRI is new tumor growth or necrotic tissue from the radiation treatment. They really don't tell us much. It seems like they are just waiting for him to die. Meanwhile, we don't know what new problems Dad will face from day to day. He is already suffering short-term memory loss, weakness , confusion,vision loss, and disorientation due to the location of the tumor. Thank goodness he is in no pain yet. If anyone can tell us more about the progression of this type of tumor and what we can expect, please e-mail me.
Theresa Hommel <tandmhommel_AT_yahoo_DOT_COM>
Tylertown, MS - Tuesday, October 3, 2000 at 14:33:48

My son was diagnosed with anaplastic oligodendroglioma / ganglioma multiforme IV on the day his tumor was removed on his c2 to the end of his spinal cord down. He was 7 1/2 months old then and is now 16 months old and on chemo therapy awaiting radiation to as close to three as possible. He has this rare cancer that was just recently found on my copy of the sonogram picture I kept at 5 months of pregnancy. Anyone out there in remission from either of these two cancers , a reply of how your treatment went and what you had would help this mother in desperate need of some encouragegment. I know since his most recent MRI his tumor has not grown back and the piece still left behind is not visible but I need your help. Please e-mail me with your treatment its for Zachs sake
Phyllis <phyls2kids_AT_aol_DOT_COM>
Lindenhurst , NY - Thursday, September 28, 2000 at 01:25:55

J am asking help for a good friend of mine. He is a man of 47 years and since last august 99 he has GLIOBLASTOMA grade 4 . Since than he has been twice operated and actually he follows tratment (chemio and radiations). Is there anybody who has the same experience and could let us know how he or she is treated and what are the results?
BRUNETTI Brigitte <BHBwrite_AT_aol_DOT_COM>
- Sunday, September 24, 2000 at 23:08:01

My father was diagnosed with glioblastoma multiformeIV the tumor is in his brain stem and can not be removed.If anyone has any information on what to expect please let me know.The doctors give him only months and he is getting worse by the day,he is only 47 years old.My heart aches for him it is so sad that people have to go through this.I wish all of you good luck and my prayers.Thank you
Jennifer <DROMPERSTOMPER_AT_AOL_DOT_COM>
Roselle, Ill - Friday, September 22, 2000 at 17:50:27

MY BROTHER IS 18 YEARS OLD.HE HAD TREATMENT TO REMOVE HIS ASTROCYTOMA TUMOR 2 YEARS AGO. AFTER THIS TREATMENT HIS SIZE(LENGTH)INCREASED BUT HE LOST HIS CONTROL ON WALKING,EATING AND TALKING.
sam <pedjman_AT_ece.ut.ac.ir>
Tehran, TEHRAN - Thursday, September 14, 2000 at 07:16:12

In April 1998 my husband,Bob, went to work normal but returned home speaking garbled. May 1 1998 an MRI showed a huge tumor in his brain's left side. May 4th he had surgery, the resulting diagnosis-Astrocytoma grade 3, Glioblastoma grade 4. During surgery he had a stroke that left him paralyzed on his right side and he had totally lost speech. With the help of a wonderful Hospice group I cared for him at home until he died in my arms on August 10 1998. I had no control over when he would die but I was able to control how he would live until then and I take great comfort in the events of those 3 months now. He was an avid sailor and, with the wonderful help of great friends, I was able to take him on day trips to his beloved sailboat and out for a sail. He loved golf so I had his golfing group over for casual dinners. I stayed upstairs so they could "gossip" without worry. I hired a masseuse to come twice a week to help soothe his pain ravaged body. I write this with the hope that it may give ideas to others in the same horrid situation. I set up his bed in the dining room, having moved out that furniture and I kept all medical objects out of sight to give the appearance of a more normal room. I live but I still grieve deeply and I pray for all others in a similar situation.
Mary Raywood <mcraywood_AT_erols_DOT_COM>
Wycombe, Pa - Saturday, September 9, 2000 at 23:34:14

God has blessed us with your talents and presence. Thank you for the gift of fight.
Karen P Carvalho <ckaren1_AT_yahoo_DOT_COM>
Laguna Beach, CA - Friday, September 8, 2000 at 01:45:26

Thank you for the informative web site. My 25 yr. old daughter had a ependymoma removed from her spinal column 11/99 (all but 2 to 5 percent). Able to walk after surgergy; radiation treatment followed--30 sessions; doing well although now 6 mos. later is having loss of energy, some headaches, and scared (anyone would be). Still seeking answers so this web site is very helpful. Am most grateful. Anyone having experience with spinal ependymomas please send e-mail. Would appreciate all info possible. Thanks! The Mom
Nancy MacIsaac <nemac47_AT_msn_DOT_COM>
Santa Rosa, CA - Wednesday, September 6, 2000 at 01:04:38

My Mother was diagnosed on Sept.1,with chondrosarcoma. We have been told this is a rare tumor.Anyone with any info about this specific type of cancer,we would greatly appreciate you sharing it with us.
Tammy Martin <tigeridgebasset_AT_aol_DOT_COM>
Glen St. Mary, Fl - Monday, September 4, 2000 at 14:31:45

My cousin who is 48 had surgery last week for a brain tumor. We were told it was an agressive astrocytoma and the surgeon was not able to remove it all. He has been given 6 mo-2 yrs, to live. Your web site has been very helpful and informative.
Cathy Hayes <mcwh_AT_tds.net>
Jasper, Al - Friday, September 1, 2000 at 22:24:04

Hello, I have recently been diagnosed with a spinal cord tumor at the T2 section of my spine..and am being scheduled for surgery at MGH I am a 45 year old woman..and any info you could send me would be greatly appreciated.. Dr Chiocca is to be the surgeon and needless to say I am a bit frightened..My Husband was killed in a barge explosion one week before this past Xmas,,and we had a son who just turned 17...I am praying through this every step of the way.. So Please send me some info that might be helpful to deal with all of this..(encouragement) Thank You so Much Sherry Ryder
Sherry A Ryder <sherryann13_AT_hotmail_DOT_COM>
Brewster, MA. - Wednesday, August 23, 2000 at 01:11:27

About three weeks ago, my room mate had a seizure and was rushed to the hospital, they took out a smooth tumor with no fingers from his right frontal lobe. The neurosurgeon came out and told his family that he thought it was a GBM. A neuro oncologist came to see us and said the tumor had been sent to a different lab. The pathology results for the tumor were supposed to be back Thursday the 10th. On the 10th we met with the neuro oncologist who told us four tumors that she thought it might be (3 malignant and 1 benign). We have never heard another word from her or the neuro surgeon in two weeks and when I do call the oncologist, the reception people act like she will call me back but she never does. Is it strange that it has been so long with no results?
Herb Hays <hchays_AT_aol_DOT_COM>
Fort Worth, TX - Tuesday, August 22, 2000 at 18:09:23

Any information about dealing with hemangiopericytoma would be useful. My 40 year old husband had a fist sized tumor removed and now suffers from siezures and ringing in the ears.
Beth Mack <mccortkb_AT_crstlukes_DOT_COM>
IA - Monday, August 21, 2000 at 17:32:14

mooi man

Surfen in Holland <support_AT_steenwijkerwold_DOT_COM>
steenwijkerwold, - Monday, August 14, 2000 at 17:31:04

I am 26 yrs old and three months ago had two surgeries to remove a brain tumor and as a result I am unable to eat. I now have a feeding tube for my nourishment. I was told that I would regain the ability to swallow and eventually be able to eat again. I am interested in knowing if anyone who has had a feeding tube, as a result of surgery, has regained the ability to swallow? I am also in search of any information about financial support available to me in order to receive radiation therapy for what remains of my brain tumor _AT_ MGH...any information provided would be greatly appriciated...thanks...
suzette salcedo <sassysuzette_AT_hotmail_DOT_COM>
tampa, fl - Thursday, August 10, 2000 at 20:38:36

I am 26 yrs old and three months ago had two surgeries to remove a brain tumor and as a result I am unable to eat. I now have a feeding tube for my nourishment. I was told that I would regain the ability to swallow and eventually be able to eat again. I am interested in knowing if anyone who has had a feeding tube, as a result of surgery, has regained the ability to swallow? I am also in search of any information about financial support available to me in order to receive radiation therapy for what remains of my brain tumor _AT_ MGH...any information provided would be greatly appriciated...thanks...
suzette ssalcedo <sassysuzette_AT_hotmail_DOT_COM>
tampa, fl - Thursday, August 10, 2000 at 20:37:36

I am in search of any information about financial support available to me in order to receive radiation therapy for my brain tumor _AT_ MGH...any information provided would be greatly appriciated
suzette ssalcedo <sassysuzette_AT_hotmail_DOT_COM>
tampa, fl - Thursday, August 10, 2000 at 20:21:48

I have just been diagnosed as having a benign meningioma of the planum sphenoidal. It is 1 cm x 1.5 cm. Surgery has been recommended. I am getting a second opinion. I would like to hear from others with a similar problem and what treatments they chose and the ouitcome.
Henriette Ayres <peterhenrietteayres_AT_msn_DOT_COM>
Candiac, QC - Wednesday, August 9, 2000 at 10:23:01

My mother was just diagnosed with Astrocytoma Stage 3. We just found this out today. She underwent surgery a week ago to have the tumor removed/biopsied (spelling?). This diagnosis is so new, she dosen't even have an appointment to get back to the hospital yet!! Can anyone give me their thoughts or suggestions on what questions they should ask the doctors? I'll be going with them and have some idea of what to ask, but I don't want to miss anything. The hospitals thus far have been a nightmare. They even had the wrong side of head scheduled for surgery.....can you believe that???? Also, would like to hear from anyone who cares to give insight into all of this. I think the reality of this sitiuation hasn't set in yet. Thanks so much. Look forward to hearing from anyone.
Jack <Stocks_AT_cinci.rr_DOT_COM>
CIncinnati, Ohio - Wednesday, August 2, 2000 at 01:31:30

My father just underwent surgury to remove a large cancerous brain tumor. WE are getting ready to start radiation soon. My question is has anyone had or known of anyone who had strange feelings after surgury. He has lost his perifreal vision on the left side and is experiencing left side weekness. The two weeks since the surgury he says he feels weird. He has a hard time decsribing the feelings and finds it very frustrating that no one can understand. I am hoping someone out there will. He feels like he is just now having what he calls glimpses of reality. He has said over this past few weeks he feels like he has not really been here. He has also descibed it as being very intoxicated. This is hard to explain . his dr. said that there is alot of elctrical stuff that goes on in the brain when you start removing parts of it but I think he is looking more for a personal approach . Someone who has been through what he is going through so he does not feel so alone. Things are always less scary if you know it is normal. He is doing very well getting his balance back and his coordination. .. I would appreciate any comments on some of these strange feelings..
SJ. Miller <bluebell_AT_plexi_DOT_COM>
Cape MAy, NJ - Thursday, July 27, 2000 at 14:07:08

This is a test of the guestbook thing.
TEST <test_AT_test_DOT_COM>
test, co - Wednesday, July 26, 2000 at 01:51:51

My mother has had lymphoma for several years and a tumor was found on her hypothalmus. Radiation was done and from recent MRIs, spinal taps and CAT she is clean of the cancer. However, she is not functioning well at all. Can't hold utensils, does not recognize people (although at times she does) and has been sleeping a lot. Her doctors do not know what is happening and she has been seen by a neurologist who did some test that showed things were relatively ok. She is on an anti-depressant....There is some talk/concern that the radiation may have caused brain damage. I would appreciate any thoughts. Many thanks.
bob orenstein <borenstein_AT_bkm_DOT_COM>
- Sunday, July 23, 2000 at 21:51:12

I love this site it is so encouraging. Please if anyone has similar to my condition, I would appreciate your contact. I am a Cancer survivor. I am a 34year old mother of a 7yr old Sophie'. Two years ago (JUL'98)I was given 6 months to survive an Anaplastic Astrocytoms GrIII (brain tumour) (5cm length) in my spinal cord (most unusual). Anyway I have had radiotherapy and now chemotherapy CCNU Lomustine and am still going strong. I was bedridden, wheelchairbound, frame supported and now walk with a walking cane - Praise God. I have been able to share wonderful times with my husband and have watched Sophie have her first two years of school. The tumour had continued to grow Nov99 (8cm+6cm fluid u/neath) when I started chemo. It is now smaller than when I was first diognosed (3cm+2cm fluid). We are estatic. We have so far surprised the specialists with my progress although we don't let a day pass without asking for Gods help.
Sharyn Rudolph <sharob_AT_ihug.co.nz>
- Wednesday, July 19, 2000 at 06:46:52

My son was diagnosed with a stage III astrosytoma in 1992 .Underwent a right crainiotomy at Palo Alto Veterens Hospital in Palo Alto Ca.Follow-uo Radiation therapy.Death Feburary 2,1993 and upon autopsy there was no residual tumor,but a comment by the Physicain performing the autopsy stated he had a moderate pressure cone . Can anyone explain this statement .
Frances Shaw <winchester0071_AT_msn_DOT_COM>
- Friday, July 14, 2000 at 20:35:57

I am a 3rd Ventricular Teratoma survivor. I first got sick in Dec 1980. I had biopsy and shunt paced. In June of '81, I had my tumor removed. In '82, I had surgery for double vision caused by my tumor. In '84, my first shunt failed. In '96, my second shunt stopped working, but it was misdiagnosed as serotonin syndrome. I developed a psudeocyst in my abdomen of fluid. I went into the first coma, in late February '97. I came out of the fourth coma, the first week of August '97. In time I was comatose, I had nine surgeries, including externalizing and reinternalizing the shunt 2 or 3 times, my appendix was removed and exploraoties were done. When I came out of the comas, I had O.T, P.T. and speech therapy. I was slowly weaned.The doctors told my parents not to have too much hope, but I AM STILL HERE!!! In '98, I volunteered at the facility I was a patient in. In early '99, I was hired in as the a social work assistant. I am going to start my senior year in college, at Western Michigan, in August, as a social work major. I hopr some day to work with brain tumor patients, cancer patients, long term care patients, rehab patients and I would like to focus on children and adolescents. I am about to celebrate 20 years, since all this started, in December and I am so exstatic to be alive and functioning as well as I am!!! I have recently been married, I am 32 years old and I am going to live to be at least 92!!! My slogan is "start your day with a smile and a good thought"!!! I decided a long time ago, that I have conquered all this for a good reason and that is to help others!!! I will never give up!!! If you have any ideas of groups I could contact for work, or anything, it will be greatly appreciated.
Bradley Thomas Horton <Beth5600_AT_aol_DOT_COM>
Elkhart, In - Friday, July 14, 2000 at 14:36:40

I am from Argentina. The daughter of my friend was diagnosed with a craniopharingioma. She started with headaches, and after a M.R.I. the doctors detected the tumor near the pituitary, in the 3th. ventricle, near the hypothalamus. She has a craniotomy and the doctors removed the tumor. Three weeks after the surgery -through a new Computer Thomography- they detected the tumor became to increase. She has another surgery to do a drainpipe because there was a lot a liquid in her brain. Please, here the doctors have a lot of doubts about how to do with this type of tumor. Please could you give me some informations about treatments for craniopharingioma. Is good to use chemo or radiation after the next craniotomy? Thanks. Sincerely. Enrique Pineyro, Buenos Aires, Argentina. epineyro_AT_datamarkets_DOT_COM.ar
Enrique Pineyro <epineyro_AT_datamarkets_DOT_COM.ar>
Buenos Aires, - Thursday, July 13, 2000 at 23:26:27

I had found your sight most interesting and helpful. Before my brother had to undergo brain surgery to remove an aneurysm, I was able to know the possible outcome. He has made a 99% recovery!
Lesley-Ann <angel_AT_futurenet.co.za>
Ixopo, Ixopo - Tuesday, July 11, 2000 at 06:33:08

great info it's nice to find a site that gives you such good information thanks
jackie johnson <jackie.johnson_AT_ntlworld_DOT_COM>
scunthorpe, - Wednesday, July 5, 2000 at 19:37:03

My sister(50) was diagnosed October 99 with oligodendroglioma tumor in the left side just above her ear. Low grade stage. Radiation began in November. Follow-up MRI in March showed the tumor shrunk from 2cm to .5mm. Wonderful news. Until June when she had a seizure (how initial diagnosis occurred), MRI and biopsy reveal that the tumor has returned and is 4cm still awaiting staging. What's next? We thought we would have a little more time than this. According to the surgeon, removal is not an option because of the growth pattern being what it is (a medical term I'm not sure of). I would love to know more than what is in this website.
Emily Ball <emilyball_AT_zoomtown_DOT_COM>
Cincinnati, OH - Wednesday, July 5, 2000 at 19:24:59

I'm looking for information on Oligodendroglima Tumors. My son first had one back in 92. Had surgary was doing good until about a year ago. He started getting real bad headachs and seizures. In May of this year he had surgary again for a tumor, the same kind, just behind the first one. We are waiting to find out if its a 2 or a 3. This time it has left him with a little more memory loss and one eye the vision is a little blurey. I'm not sure if he will be able to keep a job, if not what kind of help is there for him out there. From reading all these letters about tumors the future doesn't look to bright for him if he gets another. He is suppose to get treatments, but we haven't heard when or where. We are waiting on the doctor. Would like to here from someone with the same problem. Thelma Prudhomme tltprudhomme_AT_msn_DOT_COM
Thelma Prudhomme <tltprudhomme_AT_msn_DOT_COM>
Sabin, Mn - Sunday, July 2, 2000 at 10:17:24

My brother-in-law was diagnosed with a brain tumor(glioblastoma multiforme) I stummbled on to this website and found it very interesting reading everyones comments. It is amazing to find out how common this type of tumor is. My prayers and thoughts are with you all, even though I don't know anyone, we have something in common.
Mary Vitkus <dkvmmv_AT_optusnet_DOT_COM.au>
Werribee, Vic - Friday, June 23, 2000 at 03:37:11

On Jun 8,2000 I had an egg sized gleoblastoma brain tumor removed from my right hemisphere. My Neurosurgeon was Dr Steven Marvin of Riverside County Regional Medical Center in Moreno Valley, CA. I will be undergoing radiology treatments at the Riverside Radiology Center in Riverside California for the next four to six weeks. My Native American (Chickasaw) grandmother lived just one monthe short of her 100th birthday, I am 54 years old. I feel that after a lifetime of epilepsy /GrandMall and petite mall siezures that hve controlled my life that I will make it to my 100th birthday and enjoy my children, grandchildren and great grandchildren now. God has Blessed me Greatly by putting me in the right place at the right time, so that RCRMC and it's fine surgeons, doctors, nurses, and staff have saved my life to enjoy my family and spread hope to other cancer sufferers. "It is a wonderful Life" Sincerely, Carolyn Reynolds www.Cadypillar_AT_aol_DOT_COM
Carolyn Jean Reynolds <www.Cadypillar_AT_aol_DOT_COM>
Moreno Valleyl, CA - Thursday, June 22, 2000 at 20:53:26

52y/o caucasian female with glomus jugulare recently had gamma knife radiation seeking genetic studues and immunology...wasn't biopsied... have other nodules.. Thryoid, liver.. Hx of benign breast cysts,3 ovarian cysts, 3 vocal polyps, endometriosisand adhesions... seeking causes and prevention trials, etc...
Mrs. Karen Ortwein <dortwein_AT_aol_DOT_COM>
Easton, Pa. - Thursday, June 22, 2000 at 14:06:06

Anyone else with Pleomorphic Xanthoastrocytoma? pls e-mail me....thanx
Suz <sunshine21_AT_mail_DOT_COM>
- Wednesday, June 21, 2000 at 00:34:07

Nice WebSite... ODnt forget to visite Network Entertainment
Network Entertainment
Wizzard <wizzard_AT_network.dynip_DOT_COM>
Montreal, PQ - Tuesday, June 20, 2000 at 17:55:50

I had a astrocytic tumor removed in 1963 at Egleston Hospital, Atlanta Ga. recently I started to wonder what happened as far as diagnosis, type of tumor and surgery and treatment.Since I was 5 years old at the time I have little recall of the events. All I could find was three old hospital records. Your webb site has been more informative than any resource I have found to date. My only question is. I have many qurks in my personality at simulate ADD. Is this common?
Leonard J. Futral <none>
Loganville, ga - Friday, June 16, 2000 at 15:52:28

I'm just gathering info. Thank you
Joseph J. Minnick <sminn_AT_menv_DOT_COM>
Baltimore, Md - Monday, June 12, 2000 at 10:34:47

An excellent source of information for patient and family. Thanks.
William L Donnelly <bill_AT_thedonnellygroup_DOT_COM>
Seattle, WA - Wednesday, June 7, 2000 at 00:32:58

movement disorder from lesion of thalmus center
dale hackett
barre, vt - Tuesday, June 6, 2000 at 13:10:16

Hi, I just want to tell my story: My parents are both dead after being diagnosed with the brain tumor glioblastoma. This happened in 1994/95.My father was dignosed in december -93,my mother in february -94. She died in August -94, and my father passed away in january -95. This was of course a terrible periode for me and my sister and my two brothers. All doctors told us that this had to be accidentally. We are not so sure about that, but what can we do? We are all very concerned about our health, and wish that we could have the answer to what really caused this terrible disease.
Siri Børø Vorpvik <svorp_AT_c2i.net>
Trondheim, - Monday, June 5, 2000 at 08:38:33

Brian was an out patient at Harvard & MGH back in 1994. He had a brain tumor removed here in Michigan and then was sent to Harvard for Proton Therapy. So far it has been successful. We have always been thankful for everthing done for him while ther.
Brian & Cheryl Middaugh
- Thursday, June 1, 2000 at 19:44:54

My dad was just diagnosed with a brain tumor. We have not had a biopsy yet so we really don't know what we are looking at. I am terrified and just trying to learn as much as I can.
Mistie Ulibarri <mlulibarri_AT_hotmail_DOT_COM>
Riverton, UT - Tuesday, May 30, 2000 at 17:32:41

This was the first time I had visited your site, and all I have to say is WOW. thank you people, like Jim and Chris in the radiology department for putting up with me and thank you Dr. Ogermann for your steady hands
christos tsourvakas <tsourvakas_AT_mediaone.net>
manchester, nh - Sunday, May 28, 2000 at 17:45:55

I'm very impressed with your site! It has been very informative. I have a copy of all the material the Canadian Brain Tumor society gives out, but was still pleased to find your site. My father (62 yrs old) was diagnosed six months ago with a grade 4 astro-cytoma. He is not dealing well at all. He has told the family as little as possible and will not discuss it. I wish I could get through to him. He doesn't believe in counselors etc. I'm fortunate to have a friend who is a neurology nurse who has helped me to understand, but she is also out of ideas about how to turn around my dad's attitude so that he can enjoy today! Any suggestions?
Tempest Read <tempest_r_AT_yahoo_DOT_COM>
Vancouver, BC - Sunday, May 28, 2000 at 04:37:25

HI I AM A VERY SAD PARENT OF A BABY GIRL WHO DIED AT 8 WKS OLD AFTER 5 SURGERIES FOR A VERY AGGRESSIVE TUMOR TERATOMA , SHE WAS BORN WITH IT AND I HAD TO LEARN VERY FAST HOW TO TAKE CARE OF HER, FOR THE SHORT WHILE SHE WAS WITH US. THE CHANCES OF IT HAPPENING WERE 1 IN 3 MILLION, HOW UNLUCKY COULD WE GET. THE TEAM AT GREAT ORMOND ST HOSPITAL WERE WONDERFUL BUT NO AMOUNT OF MONEY IN WORLD COULD SAVE. I TREASURE THOSE 8 WEKS WE HAD TOGEATHERBUT MY HEART IS BROKEN.MY LOVELY LITTLE GIRL IS NOW SAFE IN GOD,S ARMS FOREVER NOW.THE RESEARCH MUST CONTINUE GOD BLESS YOU ALL FIONA X
FIONA BLAIR <THE.3BLAIRS_AT_TESCO.NET>
MIDDX, - Saturday, May 27, 2000 at 15:45:12

My son was recently diagnosed with high-grade childhood astrocytoma and I was doing some research myself and found your web site. I just wanted to thank you and tell you that I collected a lot of information from your site. Thanks again Dawn
Dawn Mitchem <dawnp022863_AT_excite_DOT_COM>
springfield, oh - Thursday, May 25, 2000 at 16:39:35

It is encouraging to see the amount of work and trouble that has gone into the web site.I had a brian tumor on the right frontal lobe, that was removed surgically in 1988. I am suffering from grand mal epileptic fits. My neoroligist feels that this will always be a problem because of the damage or scar caused by the operation. Is there no way to reduce the adverse effects of the operation apart from medication(which have had only limited success). Please provide me with some information on this topic. Thank You
Jack Boshoff <jackb_AT_mweb.co.za>
Pretoria, - Wednesday, May 24, 2000 at 13:56:39

It is encouraging to see the amount of work and trouble that has gone into the web site.
Jack Boshoff <jackb_AT_mweb.co.za>
Pretoria, - Wednesday, May 24, 2000 at 13:44:59

Our world was turned up side down Thursday May 18, 2000 when my wife Susan suffered seizure and later determined to be suffering from a brain tumor. I was told MGH is the place we need to be. Our journey is just beginning.
Marc Mespelli <clyde_AT_gis.net>
Hopedale, MA - Sunday, May 21, 2000 at 08:50:26

I have had 3 resections for a recurrent malignant meningioma. After the 2nd resection I had the standard 6 weeks of radiation. The tumor returned in 6 months, and also grew in another area of the brain. I am long for another therapy to reduce the growth on the tumor.
Cheryl Pitchal <CStolz5612>
Mohegan Lake, NY - Friday, May 19, 2000 at 09:35:48

My mother was diagnosed earlier today after suffering from a seizure. Trying to pick up whatever information is available.
Donald F. Robin <donfrobin_AT_excite_DOT_COM>
Charleston, WV - Friday, May 19, 2000 at 02:28:07

I would like to share information/experiences on myxopapillary epenemoma. Recently diagnosed, I've had one surgery and face further surgery and radiation in the future. I would greatly appreciate any information about these tumors, including causes, treatments, research, etc. I would also be happy to share information, although I don't have much yet. Thanks in advance, Ida
Ida <bostian_AT_iname_DOT_COM>
- Thursday, May 18, 2000 at 14:29:38

My 71/2 year old nephew was diagnosed with BRAIN STEM GLIOMA HIGH GRADE ASTROCYTOMA on Friday May5th, 2000. I would like to hear more from people who have experienced such a tumor and the treatments they have received. I have no idea where to begin doing research on this as we have never experienced this before. He had an open biopsy to determine the type of tumor and on Thursday May 18th, 2000, the oncologist will be talking to us about treatment. I need to know what I should probably expect to hear. Please help me, I am desperate. Christine
Christine Lee <christine_lee_AT_edu.yorku.ca>
Scarborough, ON - Tuesday, May 16, 2000 at 18:34:23

My son Matthew (age 16) was diagnosed with a oilgodendroglioma tumor in his thalamus 10 years ago. An operation to remove it was unsuccessful.He now has a shunt. He is doing really well, only having a few minor neurological troubles. He now has his drivers license and has even competed in a demolition derby! Matthew has always kept a happy and postive attitude and never complains about his condition. He is truly a miracle. To anybody that has a Brain tumor, don"t give up.
Julie Beitlich <beitlich_AT_mwt.net>
Stoddard, WI - Sunday, May 7, 2000 at 00:41:55

my husband is a surviver of an teratoma tumor. his was at the base of the brainstem, attached from the spinal cord to the back bone. it left him with sever nerve damage, and a lot of pain. he still has fluid build up inside the spinal cord behind the voice box.and a cyst inside the spinal cord full of fluid. the tumor they removed left his spinal cord flat as a ribbon. compared to the side effects that could be, my husband is doing great they say. but he has to take pain med constantly. he realy gets tired of taking med all the time. we were hoping somewhere their would be something that could stop the nerve pain, and shrink the cyst in the tumor. hopefully something will come along soon. he also lost almost all his musles from this operation. they also had to leave a piece of tumor on the spinal cord they said. any advice would be greatly appreciated.
debby <sunshine_debbie_AT_hotmail_DOT_COM>
- Monday, April 24, 2000 at 17:51:36

can any one give me any info on how i can discuss my operation of an tera toma tumer with an specialist?
tracy <tracymullins_AT_hotmail_DOT_COM>
mountaincity, t.n - Monday, April 24, 2000 at 17:03:28

My 7 year old daughter was diagnosed with an anplastic oligodendrioglioma in Feb of 97. She has had no further occurances.
Paula Johnson <paulacj_AT_hotmail_DOT_COM>
- Monday, April 24, 2000 at 01:15:28

Really nice place you have here.Keep up the good work Ok?
Thomas R Wagner <Eagleman55_AT_webtv.net>
Niles, Ohio - Saturday, April 22, 2000 at 03:34:24

I'm writing to update my entry from February 98. In Feb 95 I had surgery, chemo and radiation for a Grade 4 Glioblastoma. The prognosis was 6 months to a year and I passed my 5-yr mark on February 15th! It was hard, is hard, and will be hard, but life is sweet and I'm thankful for every day. I don't have medical answers but I believe that along with good medical treatment love, prayers and the grace of God healed me. Please, don't give up hope! Your prognosis is a statistic and not an automatic death sentence. I don't know how much time I have on earth (aiming to stick around til I'm 103!) but I try to live, love and give something back each day. Others before us have overcome huge and different obstacles in their lives, and we can too! Think positve and act through your heart and soul! "The day will come when, after harnessing space, the winds, the tides and gravitation, we shall harness for God the energies of love. And on that day, for the 2nd time in the history of the world, we shall have discovered fire." (Pierre Teilhard de Chardin, French Paleontologist & Philosopher). Step out in faith! I hold all who suffer brain tumors and brain injuries in my heart and in my prayers, for healing, courage, peace and joy. With love and in His name, Natalie : )
Natalie <nath_AT_pacificcoast.net>
Victoria, BC - Thursday, April 20, 2000 at 14:35:20

There needs to be pictures at this site please.
LeeAnn Pekovitch <m_ette34_AT_yahoo_DOT_COM>
malta, mt - Wednesday, April 19, 2000 at 11:12:01

Sarah Zipperer <sarahz_AT_mindspring_DOT_COM>
Duluth, GA - Tuesday, April 18, 2000 at 17:19:54

new patient under Dr. Hochberg and Dr. Escakar's care.
Douglas B. Miller Sr. <xtc174_AT_aol_DOT_COM>
Plymouth, MA - Monday, April 17, 2000 at 14:15:32

looking for info on anaplastic ganglioglioma. had removed 10yrs ago at age 14. also looking for other patients w/ same diagnosis. zip code is 45223. any info is greatly appreciated.
jennifer wysong <antlerz3_AT_earthlink.net>
cincinnati , oh - Saturday, April 15, 2000 at 18:56:08

Sister-in-law just had brain tumor surgery Friday _AT_ Lenox Hill (Dr. Mangiardi). Dx was glioblastoma. Are there any trials chemo or radiation) with this type of aggressive tumor? If so, could you give us some direction on enrolling her in it? Thanks for your help. She lives in Carlisle, PA and will be going there Monday or Tuesday, but we would take her anywhere to be treated.
Phil Bender <pmbender_AT_mediaone.net>
Exeter, NH - Saturday, April 15, 2000 at 16:07:22

We have a 10 year old with a third time recurring astro cytoma,which has now changed to a different type.The surgery was apr 11 ,so we do not have the pathology as yet and we will research more about this in the comming days.
DAVE HUNIK <davehunik_AT_yahoo_DOT_COM>
CALGARY, AB - Wednesday, April 12, 2000 at 18:58:58

THIS WAS A GREAT WEBSITE TO LEARN ABOUT MY GBM Brain Tumor. Thanks for the information.
terri perry <anthonyperry_AT_yahoo_DOT_COM>
Horn Lake, MS - Tuesday, April 11, 2000 at 22:16:50

My brother has had three major brain surgeries due to an oligodendroglioma tumor. He is emerging slowly. There is hope even though there do not seem to be any programs willing to work with him. I will work with him myself. It is the smallest improvement that only a family member/close friend would notice - those who know John - from his expressions to his mannerisms. He is shining through ever so slow - a true Pilgrims Progress. M. Taeger
Mary Taeger <mary_AT_tangiblereality_DOT_COM>
Beverly, MA - Sunday, April 9, 2000 at 21:13:24

i had a grade 2 astrocytoma removed 13/8/99. radiotherapy went well they think it is gone. they say it will come back in 7-10 years can you give me any added information. desperate to know how to get on with it all.
natalie <barnes_AT_picknowl_DOT_COM.au>
- Thursday, April 6, 2000 at 09:05:21

I have a son who is now 7 year old. At 2years old he was diagnosed with Grade 3 astrocytoma. He's gone through radiation and also removed surgically, but not fully removed due to the inoperable brain tumor close to optic nerve. After 1 month, his MRI showed that the brain tumor was reduced. I and my wife were so happy to hear it. After 5 years then, MRI shows that the brain tumor is returning. We are so devastated. God,if it be, willing we will find a cure and allow our son to live his life!!
Shin Kuwabara <kuwabara_AT_interlink.or.jp>
Tokyo, - Tuesday, April 4, 2000 at 22:20:56

I sent an e-mail yesterday