GuestBook2002 - MGH Brain Tumor Center

GuestBook2002

This is an update to my GBM. I was diagnosed on April 29, 2003 with Glioblastoma multiforme Stage 4. This week we received the results of the followup MRI . Tratment was 6 weeks of radiation with 6 weeks of chemo (Temazolamide). I am happy to say the MRI shows no new lesions, it appears the tumor growth has been stopped. Thank You Dr. Bishop at University of Arizona Medical Center/Southen Arizona Veterans Health Care Hospital, Tucson, AZ. Follow up treatnent will include stronger doses of chemo weekly. I and my family are very happy for the miracle.
Daniel Schaefer <dschaefr_AT_msn_DoT_com>
Tucson, AZ - Saturday, August 23, 2003 at 06:20:30

Very sad that people can not share info on brain tumors. This guest book has been tainted by society's low lifes. Thank you
Marc <mmespell_AT_yahoo_DoT_com>
ma - Wednesday, August 20, 2003 at 18:16:25

very hard to find info fast about brain cancer u should he kids to find things more faster and help them
michael <liverton_69_AT_hotmail_DoT_com>
adelaide, sa - Sunday, August 10, 2003 at 21:09:57

Thank you for providing this site.
Gordon <Gordon>
West LA, CA - Saturday, August 9, 2003 at 22:25:35

hi has anyone any ifo. on treatment of multiple menengiomas?
Chrissy
- Friday, August 8, 2003 at 17:02:01

Please check it out! In '99 my step-father was diagnosed with an inoperable brain tumor(Astrocytoma, phaseII to phaseIII). His was located between the two sides of the brain and on the underside. He and my *** went to Burzynski's down in Houston,Tx and after four years and multiple PET scans he has a clean bill of health. The tumor is gone!
Casey Vanover <KCV75_AT_hotmail_DoT_com>
Yukon, Ok - Monday, August 4, 2003 at 19:52:52

Linda's brain surgery to remove a tumor scheduled, 7/31/03. Rest your soul in the hands of God. Your loved ones will do the worrying for you. Whatever your out come Linda, you will always be loved and cherished for all of eternity.
Nancy <nanski59_AT_aol_DoT_com>
Dracut, MA - Wednesday, July 30, 2003 at 13:00:15

Just wanted to say hi, thanks and bye.
George <George>
London, London - Sunday, July 27, 2003 at 09:55:05

I am epileptic & had big problems prior to an crainiotomy operation 2 years ago. My epilepsy problem is worse than it was before the operation. I am waiting for a VNS implant & feel nervous about the post op problems as I had such nightmare following the operation I had 2 years ago. I am back to work after 13 months but feel that my employers want to get rid of me due to my illness. The UK disability act has helped me to remain in work.(I am a postman) I hope I have not depressed anyone due to my hard luck story but has anone experianced similar trouble I wonder?
Richard Watts <Richardwatto_AT_aol_DoT_com>
Birmingham, - Thursday, July 10, 2003 at 09:59:13

Thanks for a lovely site, I am very impressed :-)
Marianna <Marianna>
Sankt Peterburg, Saint Petersberg - Thursday, July 10, 2003 at 08:13:24

I was looking for information, I have MS and a pontien glieoma. It is difficult to get information from my neurologist....to busy or out of the country and i have to reschedule. eve
Eve-Lyn Williams <mkandev_AT_earthlink_DoT_net>
Fayetteville, NC - Wednesday, July 9, 2003 at 01:31:28

I am a 55 year old female,in April 2003 I was diagnosed with a meningioma tumor by a ct and mri. On June 25, 2003 I had surgery, so far so good. 32 staples and 17 1/2 incision. To complicate my surgery I have pulmonary hypertension and had to have a machine breathe for me and a heart line, but I made it thru with no complications has of yet except for when the ventalator was placed it took one of my front teeth and broke two more. But I am alive, the tumor had started to grow. On July 8th I am having the staples removed and will know more of my progress and future treatments. I had not one evil of a tumor but a second of pulmonary hypertension to deal with, as I said so far so good and I hope and pray that it stays this way. Tomorrow I will know more about my diagnosis and what my future holds for me. The thing I am thankful for is that they found it in time to do surgery. The best of luck to anyone that has to undergo this kind of surgery. Sincerely, Cheri
Cheri Brink <cheri546_AT_webtv_DoT_net>
Brazil, IN - Monday, July 7, 2003 at 07:16:33

Hi, i'm from argentina, and i would like you to send me some information about cancer in general. If you have information about it, please send it to me. thanx
Claudia <quiero_un_mail_AT_yahoo_DoT_com_DoT_ar>
S.A. de Padua, - Friday, July 4, 2003 at 20:02:43

my brother has had surgery for MULTIPLE INTRACRANIAL METASTASES,he has 3 treatments of radiation, he is stage 4, would someone that has been through this type of brain cancer, please contact me...
diann <kdkey53_AT_aol_DoT_com>
cullman, al - Thursday, July 3, 2003 at 10:47:04

Hi, im 20 yrs old and ive been diagnosed with an epidermoid tumor. im waiting another 6 months to follow up with another mri. if theres anyone who has this problem, can you please email me any kind of information. ive been to like 5 skullbase surgeons, and im confused on what to do. p.s- if anyone has had this type of tumor and has considered or had done cyberknife or gammaknife radiosurgery can u please email me, thanks,
lidia <azz6bella_AT_aol_DoT_com>
bayside, ny - Thursday, July 3, 2003 at 00:20:56

hello! i was diagnosed in march of 2002 with medulla blastoma. at the age of 37, i did not expect to get cancer, let alone a normally childhood cancer. my older bro teased me about it. he told me "ed, this is just like you! you couldnt just break your leg, you got cancer! in your brain! why do you have to go to extremes? needless to say, after multiple operations, chemo and radiation, i am very happy to be in remission. i want to get a discussion group together, and possibly a non-profit company going. so many people need help out there and anyone that has had cancer has a special knowledge that can help! i cant do this this alone, so please write me. we will make a difference together!!
ed ichinose <edichinose_AT_hotmail_DoT_com>
chicago, il - Tuesday, June 24, 2003 at 15:37:42

My 15 month old son was diagnosed with a craniopharingioma. He presented with vision loss which became very severe in a short time. Surgery was done to drain fluid and place an ommaya resevoir. His vision has improved and chemo will be injected into the tumor via the ommaya. Surgery to resect may follow. There are concerns about problems with pituitary function later on. I just wondered if anyone has been through this and how it went.
jill <jillwagner21_AT_hotmail_DoT_com>
- Monday, June 23, 2003 at 22:29:20

My 40-year-old brother-in-law has had a GBM for a year now. He was diagnosed last July 2 and was given a year to live. He is doing fine now after radio therapy and chemotherapy. Am I to expect any thing too awful? His tumor is on the parietal lobe on the corpus callosum. Please contact me if you have any information to give me. Viviana.
Viviana García <lagallega_AT_hotmail_DoT_com>
corodoba, corodoba - Tuesday, June 17, 2003 at 03:51:39

I had a pilocytic astrocytoma brain tumor. I need lots of questions to be answered. If you can tell me anything at all, please do
rostik ninichuk
rockford , il - Monday, June 16, 2003 at 11:08:08

I have a stage 4 GBM which we found about 6 weeks ago. I am taking treatment by Dr. Bishop and Dr. Jenelle at the University of Arizona Oncology Dept. I am currently on radiation for about 2 weeks and chemo for one week. The side effects aren't a big deal yet. (CALL THEM ANYTIME) I am 55 years old and already have some right/left issues. Where am I going with this? Is this a buy some time only or is there a path? What else can I be doing to make this a chance for my family? My family is my issue,I love them more than anything and will expend everything for them. Any studies anyhwere that will give me directon AND HOPE AND ENCOURAGEMENT I sincerely ask now. GOD BLESS YOU and THANK TOU! Dan Schaefer
Daniel Anthony Schaefer <dschaefr_AT_msn_DoT_com>
Tucson, AZ - Monday, June 16, 2003 at 10:15:56

My cousin, who had just celebrated 31 years of marriage on Valentines' Day, was diagnosed on March 4th 2002 with a brain tumour: a highly malignant glioblastoma- astrocytoma Grade IV. The good news is that it's likely to respond to proton-beam irradiation, and that she's already at one of the three places in the world where such treatment is available. I am told that, under these circumstances, no one talks of cure, only survival. My cousin's and her husband's goal is 100-year survival. She has trouble swallowing, drools a bit, and her tongue is not so nimble; but she both sleeps better and has more energy. I know this thing is BAD BAD BAD, and would really love some information on just what we can expect, as opposed to what we are so desperately praying for. We are all reminded that every day is a gift from God. Long ago a nameless Hindu poet wrote the following: "Look to this day! For it is life, the very light of life. In its brief course lie all the verities and realities of your existence: The bliss of growth, the glory of action, the splendour of beauty. For yesterday is but a dream, and tomorrow is only a vision; But today, well lived, makes every yesterday a dream of happiness, And every tomorrow, a vision of hope. Look well, therefore, to this day!" I am praying for God's hand to be on our precious Euni, her husband, children and doctors. May the Great Physician guide them all.
Rita Baldwin Murphy <baldwinmurphy_AT_optusnet_DOT_COM.au>
Sydney, NSW - Thursday, March 7, 2002 at 06:44:28

i was dignosed september 2001 and have went through 2 chemo treatment and have to have a bone marrow transplant later on if anyone has experienced that could you please email me!!!!!!
Stephanie Louderback <Stef_L_82_AT_hotmail_DOT_COM>
effingham, Il - Monday, March 4, 2002 at 22:00:20

Hi all. Let me start by saying God Bless you all. I have recently been diagnosed with cavernous angioma. Like a lot of you, I had never heard of such a thing. All I know is that it sounds very scary to have something in my brain that they say I was probably born with, and it is now showing up at mid age (45). I have been treated for high blood pressure for a little over a year now. I have recently began having migraine headaches, which start with a flashing in my eye, blurred vision, dizziness, and sometimes passing out. After I come to is when the pain actually starts. After one of these headaches which occured at work and they called an ambulance is when an MRI was performed and when this was found. There is evidence of it leaking blood in my brain previously. The doctors are treating me with a second blood pressure pill (still take my original also), and a medication called Ellavil. They say that these 2 meds are found to prevent migraines. They say this should take care of my condition. I'm looking for feedback from anyone who has experienced having cavernous angioma. The things I'm reading in my research are scary to say the least, and sometimes hard to understand all the medical terminology. I would love to hear from anyone out there who can relate to this. God Bless you all, and thanks very much for this page.
Terrie Castleberry <terrie1_AT_charter.net>
Denton, TX - Sunday, March 3, 2002 at 14:38:23

I found this website looking for information on my mom's dx - she is 57 and has just had a gross resection of a brain tumor and been diagnosed with glioblastoma mulitform grade 4. The dr.s at Hermelin Brain Center in Detroit are recommending 6 weeks of radiation combined with Temador and Accutane - with the chemo continuing for a year. My father has found a clinic in Houston that uses antineoplastons that are not FDA approved and not very well documented besides annectodal cases. Does anyone know of a better way? My mother is so young and otherwise healthy and I am just confused. I wish you all well and thank you for any help.
Jami Cummings <rosiejami_AT_aol_DOT_COM>
Annapolis, MD - Friday, March 1, 2002 at 23:51:35

I lost my great nephew 17 months old on December 25 2001 from brain stem tumor. I wish more Dr.s would do more rescheart on this insted of always blaiming ear infections for every thing.
Ramona Evans <ramona_stewart_AT_hotmail_DOT_COM>
Eastman, Ga - Monday, February 25, 2002 at 14:05:19

My husband was diagnosed with a oligodendroglioma. He had an successful resection of his tumor at MD Anderson. However there is still 5-10% of the tumor in his basel ganglia. He will start chemo in a couple of weeks. Either PCV or Temodar. Please...Looking for info on either chemo protocols.
Melinda Berra <bunnyberra_AT_email_DOT_COM>
St. Louis, Mo - Saturday, February 23, 2002 at 23:16:12

My 31 year old daughter was diagnosed with a brain tumor 1-3-02. January 8th a 4cm tumor was removed, it is a mixed oligo-astrocytoma, stage 2 She is also pregnant, due May 10th. The tumor was only partialally removed because it is too close to her motor skills area. Follow-up MRI's have shown no regrowth.No treatment can begin until after the baby is born and as long as there is no growth the doctors want the baby to go to term. She was having headaches but they had subsided before she had her first MRI. She is having no other symptoms. We are all scared as the doctors have only given her a 25-30% chance of survial. Right now we are going to Cleveland Clinic, my daughter really likes her doctor. Any one have any ideas? Kathy
Kathy Brummett <brummett_AT_accesstoledo_DOT_COM>
Rossford, Oh - Thursday, February 21, 2002 at 10:22:47

My son Ben was diagnosed with glioblastoma multiforme in 1999, later we were told that he had spots on his spine, this was why he was in so much pain. Surgery was done removing visual tumour in his brain, the spots in his mengis could not be removed, as soon as Ben recovered from surgery he recieved 30 bouts of radiation, immediately after he took six regiments of chemotherapy. A year of treatments was absolutely terrible, but I guess it was worth it because the diagnoses was that he would not see his next birthday and he has seen two. Ben has been doing very well but living with the worry of when it will regrow is so hard on parents. My question to any one would be has there ever been a child that hasn't had regrowth from this type of cancer? I realize that this type of cancer in a child is fairly rare plus the metatizing to the spine but does any one have any information? Our oncologist is great but she doesn't know of many cases. Thanks for listening.
Dainah Draper <ddraper_AT_mb.sympatico_DOT_COM>
- Wednesday, February 20, 2002 at 22:06:32

i am a 10 year post transphenoidal surgery 50yr old caucasian woman.
marla misler <freakymish29_AT_attbi_DOT_COM>
salem salem , or - Wednesday, February 20, 2002 at 15:30:49

I AM A 30 YEAR OLD WHO UNDERWENT A CRANIOTOMY FOR REMOVAL OF A COLLOID CYST OF THE THIRD VENTRICLE IN NOVEMBER 2001. SO FAR THINGS ARE WELL. I STILL HAVE HEADACHES AND MY HAIR IS STILL FALLING OUT AROUND THE INCISION BUT I FEEL PRETTY GOOD. I STILL GET VERY TIRED AND MY VISION SEEMS TO BE AFFECTED. IF ANYONE ELSE HAS HAD THIS AND CAN OFFER SOME INFORMATION I WOULD BE GRATEFUL.
Rhonda Greer <greersx5_AT_tassnet.net>
Bloxom, VA - Tuesday, February 19, 2002 at 21:07:39

I am a mother of three beautiful children, two daughters and my son. Five years ago I lost my youngest daughter to stomach cancer,she was only twenty two. Three years and three months after losing my youngest daughter, my oldest daughter was told she had breast cancer at the age of twenty eight. my oldest daughter has a little boy who just turned five. Two months after his birthday my oldest daughter passed away. This is the United States the richest in the world, why can,t they find a cure for these painful deaths? I am only forty nime years old and in fear for my sons life along with my grandsons as well. I don,t have any faith in our doctors any more!
Maryann Carson
- Tuesday, February 19, 2002 at 16:53:21

I am caretaking my 52 year old sister, who was diagnosed on 10/31/01 w/ glioblastoma multiforme grade 4. She has since had 2 surgeries to partially remove the tumor, which has reformed and infiltrated healthy tissue, as well as, developed a new satilite tumor, she has undergone 7 weeks of radiation w/ concurrent chemo. using TEMODAR, she will begin another course of chemo in 2 weeks. I would like to know what to expect as far as progression of the disease as it relates to her symptoms and basic quality of life.
Jackie Morris <jaxon1_AT_gnt.net>
Ft. Walton Beach, FL - Tuesday, February 12, 2002 at 12:50:53

My 25 year old nephew in India has been diagnosed with Gliomatosis cerebri. Doctor's seem to be ruling our surgery and reccommend radiation. His parents are concerned about the efficacy of radiation and the potential side effects that it can lead to. I would appreciate information from anyone who has had a similar unfortunate decision to face and their resulting experience. Are there any other alternative medicine treatments that have been tried or known to have helped in any specific case? Thanks Nasir
Nasir Memon <memon_AT_poly.edu>
Holmdel, NJ - Monday, February 11, 2002 at 01:21:05

I have a craniopharyngioma i have had surgery,and am now starting radiotherpy as they say with radiotherpy theres a less likely chance of the tumour reocurring.I now have diabetes insipdus and also take hydrocortisone,which i will stay on now for the rest of my life.They are sorting the rest of my hormones out after my radiotherpy because i have no sexual feelings my peroids have stopped and i get very angry very quickly now.I have aslo put two stone on oi weight my doc said that when i go on growth hormone that the weight will come off with a sensible diet and exercise,i exercise and eat healthy now but have still put alot of weight on but if i hadnt of done this i would of been even bigger.Weight has got me down but you just have to deal with it at the time being.Everything is working out now a little while ago i thought things were never gouing to get better but now i can see my life getting back to normal again.I am 19 female and had no signs of a tumour until last year when i started getting headaches,and i felt very tired and so i went to the doctors he said i had yupi flew then i had strange flew like symtoms and started drinking excessivly i thought it was the flew making me dyhydrated but it carried on for a few days so i went back to the doctor who said i was drinking as a habbit,and that the headaches i had were migranies.But i knew it was more than a headache and me drinking so much was not in my head.So i kept going to the doctors for different ansewer till eventully they sent me for a scan .Then all of a sudden the doc wanted to come around my house and he came around and said you have a tumour which has been there since you was born.It took them months to discover the problem thankfully the tumour was very slow growing .I can now see myself getting back to my old self i go clubbing with my mates anyone going through surgery etc dont give up you will soon have your life back.Dont hold all your troubles in get them out in the open were people can help you holding it all in will make it worse .If anyone can tell me anything about human growth hormones or any form of hormone i will be on than i would be very grateful.All you people hang in there life will get better.If anyone wants to ask me a question our wants someone to talk to about how they feel and what they r going through than if i can help im here just email me.
nadine <nadine399_AT_yahoo_DOT_COM>
cambridgeshire, - Sunday, February 10, 2002 at 07:27:37

My brother-in-law has recently undergone surgery for the second time to remove a tumour. He has medullablastoma and after his first operation recieved radio therapy and chemotherapy.We know little of this condition and would like to find out more about it, prognosis,drugs and treatments. He is 33 years old.
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Porter Simpkins <tin2311_AT_hotmail_DOT_COM>
Pinkerton, NY - Saturday, February 9, 2002 at 16:12:27

I am so afraid of cancr since my mother passed away with a tumor 20 years ago.
Darla Kenson <ken2344_AT_aol_DOT_COM>
Buroughs, PA - Saturday, February 9, 2002 at 16:08:52

Thanks for the web-page my Mom has Glioblastoma Grade 4. It sounded very bad the first time I hear it. Now that I have read you page I know that it is real bad.Please find a way to stop this she will be a hard one to lose.
Joe Gaskins <gaskins_AT_pp.okstate.edu>
cushing, ok - Friday, February 8, 2002 at 14:52:52

im 23 years old and have been dx with pituitary tumor about 8 years ago i have one child and have been through 2 surgeries and one gamma knife treatment. no success yet. im scared and clueless. anyone that can help with information or support, please email me. i want to get better but i have no clue which way to turn anymore im tired of being sick i do my best to keep it inside but im tired of not being normal and not living a normal life with my little girl
michelle <sweetlips319_AT_yahoo_DOT_COM>
lake charles, la - Friday, February 8, 2002 at 01:23:56

I would like to hear from anyone with any info on glioblastoma. My father in law was diagnosed about 4 1/2 months ago. At that time he was told that he would have 6 months to 1 1/2 years. He is going downhill very fast, even after having radiation. Can anyone out there help me as to what to expect in the end? Right now he is in a semi come and is having some confusion and nausea, as well as some severe headaches. Please help to find out more!!
Tania <www.holmtania_AT_hotmail_DOT_COM>
Radium, BC - Thursday, February 7, 2002 at 21:18:08

My mother (57) had surgery 15 october 2001, pathology result Glioblastoma Multimforme, late december we finished raditherapy. She felt so tired after that. Now she has good days and bad days, but she is not the same person she was. Now we only can wait to the final trasition to the other side, but I pray for an easy and not suffering final. She is takinf dexometasona 2mg/3 times day. When we trie to stop with dexometasona she gets worst so I think that means the tumor is growing, hopfully one night while she is sleeping something happens and she goes. She do not know the real diagnose, she belives that tumor was ASTROCITOMA grade III, I toke the right decision?. In a few months she won´t be with us anymore, it is so hard for me to wake up every morning thinking that cuold be the last one for her, To much suffering, Why?. Thanks a lot to the neurocirugano DR. FREDERIC BERTOMEUS (Clinica Quirón Barcelona), and Radiologist DR. JOAN CASALS (Quirón BCN). Both of them are more than doctors are persons, who listen me, helped me, seven days a week, and maked things esier for me. Time will repair all the damage, but I always will remmeber this exausting expirience.
Eduard Gibert <edgibert_AT_terra.es>
Barcelona, - Wednesday, February 6, 2002 at 13:41:52

Congratulations for the information you give in your web.
Eduard Gibert <edgibert_AT_terra.es>
Barcelona, - Wednesday, February 6, 2002 at 13:07:05

My 13 year old son had a large glomus jugulare tumor removed in April of 2001. Since October of 2001 he has had a non stop headache - 24 hours a day. We have tried all of the traditional migraine medications with no relief. The doctors do feel that the headaches are caused from the surgery, but don't know what else to try. Does anyone know of someone else who had this problem and what they may have done to treat the headaches?
Becky Robb <genrep_AT_alltel.net>
Iola, KS - Monday, February 4, 2002 at 22:27:11

Iwant to thank Dr. John k. b. Afshar for the successfull removal of a pituatary tumor performed in marti memorial hospital ,stuart fla.god bless you dr. afshar.
kathleen m stinson <katspal_AT_msn_DOT_COM>
stuart, florida - Sunday, January 27, 2002 at 10:56:02

I just want to bless my neurosurgeon Dr.John k.b.Afshar on the trememdous removal of a pituatary tumor in the year ofJan.4 2000.INmartin memorial hospital.Agreat sucess god blessyou.
kathleen m stinson <katspal_AT_msn_DOT_COM>
stuart, fla - Sunday, January 27, 2002 at 10:41:26

Hi, my husband was dx GMB. He is 50 years old. He was operated and 70% of the tumor was removed and 8 Gliadel wafers were placed on January 15th, 2002. The pathology report indicates glioblastoma multiforme with features of gliosarcoma. On January 24th he was given the Gamma Knife and the MRI indicates that his tumor has already grown in the past 9 days! Today is January 26th and he is on his 2nd day of Temodor, and he also has been on Decadron 4mg 3 times a day since January 10th. He will have another MRI in two weeks and a blood count in 3 weeks. The Doctor says that he will make another craniotomy if the tumor still grows in 5 weeks. He is looking great, sweet and loving. Yesterday the temodar made him feel really tired and sleepy. But it could have been much much worst. We believe in God, he prays every day. I do centering prayer. I think we are in the eye of a storm and so many things can happen. Would love to hear stories related in our case. Understand our case is quite unusual. By the way, my husband is not showing any interest in becoming involved in the details of his sickness. It seems to help him worry less.
virginia heinsen de freites <lubr9_AT_aol_DOT_COM>
- Saturday, January 26, 2002 at 10:02:50

What dose of iv bolu methylprednisolone would be given to a 25kg child after spinal cord surgery?
Susan MacLeod <sktm4_AT_msn_DOT_COM>
North Providence, R.I. - Friday, January 25, 2002 at 02:07:49

hi..this is sooo hard for me. My future father-in -law has been diagnosed with gmb4 on 9/14/01. we have been through chemo & radiation in decnember. this is a very large tumor, 5 cm. what can we do for quality of life? are there any clinical studies out there? we desparately need help..if that's even an option. Thank you sooo much for the suggestion of prayer.... it has helped me immensely. please keep us in your prayers. thanks!!! diane & scott
diane <sweetpea53040_AT_yahoo_DOT_COM>
- Thursday, January 24, 2002 at 21:20:11

I was diagnosed with GBM in July 2001. It was a Phase IV Tumor and I was given 3 Months to live. Here it is 6 months later and I've beaten their odds. Faith in GOD and hope keep me going.
carl courville <tiffcourville_AT_hotmail_DOT_COM>
- Thursday, January 24, 2002 at 20:18:21

THANKS FOR HAVING THIS SITE.IT WAS PRETTY INFORMATIVE.MY SISTER IS 30 AND HAS HAD ASTROCYTOMA YHAT WENT TO GLIOMA WE ARE EXPECTING TO LOSE HER SOON.WE FOUGHT THE GOOD OR INTHIS CASE BAD FIGHT FOR FOUR YEARS.GOOD LUCK TO ANY ONE THAT HAS REASON TO VISIT THIS SITE.REMEMBER TO SHOW EVERYONE HOW MUCH YOU LOVE THEM THANKS!
MICKEY H.
- Wednesday, January 23, 2002 at 19:14:45

IN FEBRUARY OF 1997, MY HUSBAND UNDER WENT BRAIN SURGERY TO REMOVE A TUMOR. IT WAS A MENIGIOMA AND WAS ATTACHED TO THE TOP LEFT FRONT LOBE. HIS PHYSICALLY AND EMOTIONALLY STATUS ARE NOT WHAT THEY WERE BEFORE. PHYSICALLY HE GETS TIRED REALLY EASY. HE FEEL A DIFFERENT KING OF HEAD PRESSURE THEN FROM BEFORE THE TUMOR WAS REMOVED. HE IS LEGALLY BLIND ON HIS RIGHT EYE. EMOTIONALLY HE SUFFERS AS WELL, HE IS QUICK TO ANGER, DOESN'T COMPREHEND THINGS EASILY, AT TIMES HE GOES INTO A STATE OF DEPRESSION. WHAT I WOULD LIKE TO KNOW IS WHAT ARE THE LONG TERM AFFECTS OF A TUMOR BEING REMOVED FROM THE BRAIN? WILL THE PERSON EVER FULLY RECOVER? WILL HE BE ON MEDICATION FOR LIFE, ANTI SEIZURE MEDS, ANTI DEPRESSION MEDS, SLEEPING PILLS, ETC? WHAT KIND OF MORE SUPPORT CAN I GIVE HIM? ESPECIALLY WHEN HE DIVERTS TO MIXING HIMSELF WITH ALCOHOL WHICH FURTHER TRIGGERS HIS EMOTIONALLY OUTBURSTS? --RUNNING OUT OF PATIENCE FOR MY PATIENT -- NORMAANNLOPEZ_AT_HOTMAIL_DOT_COM
Norma Lopez <NORMAANNLOPEZ_AT_HOTMAIL_DOT_COM>
- Tuesday, January 22, 2002 at 13:19:18

We have recently found out my sister in law has a brain tumor. Your website has been very helpful. Thanks so much!
Krista Thornton <Luvsadream2_AT_yahoo_DOT_COM>
Mount Olive, nc - Wednesday, January 16, 2002 at 20:06:45

My grandma was diagnosed with Glioblastoma multiforme grade 4 in September 2001. The doctors gave her 3-6 months to live.It is so hard to watch her just wither away! She is unable to talk and completly paralized on her right side. She moans and cries alot and holds her head but the doctor and hospice nurses think it is mostly anxiety and pain BUT all of the family think it is pain. They had her on darvacit it did not help so they put her on oxycodene 2 capsules every 4 hrs. and they have 3 patches on her that are the oxycodene but it still doesn't help. Does anyone know anything else that may help? And any information on what to expect in the end? Thank you and God Bless!!!!!!!!!
Sherry Collins <caci9_AT_hotmail_DOT_COM>
Harrison, Ar - Saturday, January 12, 2002 at 19:38:23

Had minimally-invasive removal of golf-ball size benign ependymona on 7-27-01, with 1/8 remaining. Gamma Knife has been recommended for removal of remainder. Need info on negative after effects, i.e. nausea, vomiting, headaches, length of time for recovery. Any alternative methods known to shrink remainder?
Ellie <eeda_AT_core_DOT_COM>
Akron, OH - Wednesday, January 9, 2002 at 21:21:33

I'm a 18 yr. old freshman in college. The weekend before I started my fall semester in college I was diagnosed with a pitutary tumor. I have to come home from college every 3 months to have MRI's and cat scans done. They gave me some pills but all they said was that "right now the tumor is as small as a cyst and not operable. But it could lead to blindness, hemridge, or an anurism". I was wondering if anybody could give or send me more helpful information. Please. Thank you Kamilah.....
Kamilah Mitchell <daddiesgirl215_AT_yahoo_DOT_COM>
Columbus, Oh - Wednesday, January 9, 2002 at 19:17:27

My son Tim, 36, passed away on 7/1/01 after a five year battle with olegodendrioglioma. This was after 3 operations, 2 bouts of radation and chemotherapy. Up until last October he carried on with his life as though there was nothing physically wrong. As I read these passages and stories, I see how blessed we were to have him for so long after being diagnosed. May God bless all those living through this horrible time with their loved ones. Maybe someday the suffering they have incurred through all the medical treat-ments will produce a cure.
judi slaper <jslaper_AT_airsep_DOT_COM>
- Wednesday, January 9, 2002 at 16:33:55

I have Metastatic Paranglioma which hasw given me many bone tumors hips, spine, shoulders, head ribs etc.. As of two weeks ago the spinal tumors have put me in a wheelchair, also while I was getting radiation to that lower spine. I am desperate to regain freedom and some form of normal life. Does anybody know of any treatments that I can try that might work for me? (Current treatment options are Octreotide, Thalidomide, or a chemo cocktail which may be too dangerous to my body.) Please help, Donal
Donal McGetrick <donal64_AT_msn_DOT_COM>
- Sunday, January 6, 2002 at 12:12:07

I turn 25 in 2 days and I was diagnosed with Medulla Blastoma on Jan. 18th, 2001. This is a very rare cancer for adults. I had brain surgery that was only able to remove about 2/3 of the golf ball sized tumor. I then got a shunt to relieve the pressure in my brain. I was in formed that the cancer had spread to my spine. I went through 3 very strong cycles of chemo, followed by about 2 months of radiation for brain and spine. After 2 follow up MRIs I can glady say I am cancer-free and getting stronger everyday. If you have any questions...I'll answer them the best that I can.
Rob <B1GPASTOR_AT_aol_DOT_COM>
Groton, CT - Thursday, January 3, 2002 at 21:49:55

hi every!my mother was told by the various doctors that she had lost her hearing becouse the nerve conacting the ear to the brain has dried up.also shes got ulcer.i want to know is there any way that her nerve can be back to normal.she gets dizzy and suffer very bad headaches.could any one please point out any good site or a hospital in pakistan for her.thank you every one
Abid Munawar <abidnustian_AT_yahoo_DOT_COM>
Lahore, - Thursday, January 3, 2002 at 21:05:43